Category Archives: lewy body dementia

Hospice and more ethical-emotional dilemmas

Mom has been with hospice a few months now.  I’d only heard the most fantastic things about them, so felt positive about this transition.  Mom qualified not because she was dying, but because her doctor knew we’d both reached our … Continue reading

Posted in caregiver stress, support, and respite, dementia, lewy body dementia, parkinson's | Tagged , , | 6 Comments

Riding the Waves of Dementia

The extremes of Mom’s lewy body disease have lent plenty to write about lately, but making the time and space to emotionally process and translate it for others has not been something I’ve done.  Some if it still feels too … Continue reading

Posted in advocacy, dementia, lewy body dementia, memory care and residential options, parkinson's | Tagged , , | 2 Comments

Saying no to medical clutter – unnecessary procedures, supplements & meds

Mom and I have been letting go and saying no a lot lately. First, she started refusing her supplements and vitamins.  Somewhere in her brain she still knows what the important pills are.  She’ll never decline her thyroid med if … Continue reading

Posted in advocacy, caregiver stress, support, and respite, dementia, doctors and medical, holistic health, legal issues, lewy body dementia, memory care and residential options | Tagged | 6 Comments

First Guardianship Hearing Over

First thing this morning I went to court again for Mom, but in a very different way.  Last time we went a year ago was awful – that summer she’d been hospitalized for complications from an undetected UTI that caused her to perceive … Continue reading

Posted in advocacy, doctors and medical, legal issues, lewy body dementia, parkinson's | Tagged , , | 3 Comments

Nowhere to Go

My mother has been in the hospital what seems like most of the summer, though I know it’s not true. This is her second hospitalization for the season, and I think we’re on week 3.  Anyone who’s a caregiver knows … Continue reading

Posted in advocacy, caregiver stress, support, and respite, dementia, doctors and medical, family issues, inclusion, lewy body dementia, memory care and residential options, parkinson's | Tagged , , , , | 3 Comments

How much suffering can you witness and how much do you share?

Mom’s still in the hospital.  They have her in a psychiatric unit due to the intensity of her delusions.  Sometimes I come in and she has an amazing team taking good care of her.  Other times I walk in and no … Continue reading

Posted in caregiver stress, support, and respite, lewy body dementia | Tagged , , | 10 Comments

Back to the hospital for paranoia and delusions

This week I was able to get Mom to the hospital before her staff called 911.  I don’t think I posted about her ER visit last time, which was only a few weeks ago and involved an ambulance. Paranoia and … Continue reading

Posted in caregiver stress, support, and respite, dementia, doctors and medical, lewy body dementia, parkinson's | Tagged , , , , | 4 Comments